Monday, March 9, 2015
Have You Voted Today? $100,000 for NPC Research
Coach Painter is catching up with the Coach who is currently in in first place. They are almost neck and neck with 6 days left to go for voting! Have you voted today? www.votemattpainter.com
Sunday, March 8, 2015
Vote Today, Vote Daily ~ $100,000 for NPC Research
Matt is currently in 2nd place! Don't forget to vote today and every day till the 15th!
Saturday, March 7, 2015
Friday, March 6, 2015
Thursday, March 5, 2015
Coach Matt Painter Competes for Local Charity ~ $100,000 for NPC Research
Dear NNPDF Families and Friends,
The Smith family sent us a video highlighting the efforts of Coach Matt Painter from Purdue University and the Smith Family BReaK-Thru Fund in their quest to win $100,000 for NPC research!
We're 10 days away now and the overall efforts of our collective NPD community has been absolutely amazing! Coach Painter is in first place!
Remember to vote daily and share within your own personal circles. Let's keep this momentum going and see the Smith Family BReaK-thru Fund & Coach Matt Painter to the Championship position!
Vote Today ~ Vote Everyday!
Wednesday, March 4, 2015
$100,000 for NPC Research ~ Just 11 Clicks Away ~ Vote Coach Matt Painter ~ FINAL ROUND
Dear NNPDF Families and Friends,
The entire Niemann-Pick Disease type C community has been offered an unparalleled opportunity to raise $100,000 towards NPC research, but it will only happen if YOU take action and encourage others to do the same. It's easy! Vote everyday online between now and March 15th to push the Trent and Julie Smith Family Foundation "BReaK Thru Fund" for NPC research to the finish line and the top prize of $100,000! (Three of the Smith family children have been diagnosed with Niemann-Pick Disease type C ~ Braden, Riley and Keaton ~ thus BReaK-Thru Fund.)
The FINAL round of voting opened on March 2nd, 2015 and continues through March 15th when 1 Coach out of the final 4 will claim the $100,000 grand prize!
Matt is currently neck to neck with another Coach and we want to make sure he is announced as Champion on March 15th!
Vote daily, share this with your families, share this with your friends and encourage them to do the same.
Alone we are rare, but together we are strong!
Monday, March 2, 2015
NPC In the News ~ The Wall Street Journal and BBC News
Dear NNPDF Families and Friends,
The NNPDF Central Office was recently notified of three articles "In the News", which address ongoing therapies and family efforts to care for their children for Niemann-Pick Disease type C. The first two articles are highlighted in the Wall Street Journal, the third in the United Kingdom via the BBC.
- "Deaf or Death? In Drug Trial, Parents Weigh Life vs. Hearing Loss"
- "Others Hit Unexpected Obstacles in NPC Survival Fight"
- "Our Bid to Raise Awareness of Our Son's Disease"
Visit the NNPDF Newsline to view the articles: http://www.nnpdf.org/Newsline2015.html#WSJBBC
Subscribe to:
Posts (Atom)