$100,000 Won for NPC Research ~ Thank You!!

This is amazing!!! Thank you to everyone who participated in the Coaches' Charity Challenge!  Because of your continued efforts of voting everyday, the Smith Family BReaKthru Fund & the Ara Parseghian Medical Research Foundation  just won the $100,000 grand prize for NPC Research!!!

Community Action Needed! 1 Day to $100,000 for NPC Research!

Coach Painter is still in first!  Don't forget to vote and share through tomorrow!  Let's see Coach Painter to the Championship and $100,000 in NPC Research!

http://www.votemattpainter.com

ALERT: 2 Days to $100,000 for NPC Research

Matt Painter is in first place thanks to all your diligence in voting and raising awareness!  Let's not let this momentum stop now with 2 days left to win $100,000 for NPC research!  Remember to vote and share!

http://www.votemattpainter.com

Vote Today. Vote Every for $100,000 for NPC Research!

Coach Painter is in first place!  Keep the votes coming and make $100,000 for NPC research a reality!  We're so close now!

ALERT: 4 Days to $100,000 for NPC Research!

Coach Painter is tied at 46% with the other Coach!  There is 4 days left for voting, so let's keep encouraging family & friends to vote every day through the 15th!  http://www.votemattpainter.com

Phase 2/3 Adult and Phase 1/2 Pediatric Clinical Trial Update

Dear NNPDF Families and Friends,

Representatives of the National Niemann-Pick Disease Foundation (NNPDF), Niemann-Pick UK and the International Niemann-Pick Disease Alliance (INPDA) today participated in a teleconference with Genzyme, A Sanofi Company.

We were pleased to learn that plans for the Phase 2/3 Adult and Phase 1/2 Pediatric Clinical trial of rhASM for ASMD Niemann-Pick disease continue to progress. Discussions continue with the regulatory authorities, including the FDA and the EMA and we expect Genzyme to release a more detailed community update soon.

Please contact the NNPDF Central Offices should you have any questions at: nnpdf@nnpdf.org

5 Days and Counting to $100,000 for NPC Research!

Remember to keep voting through March 15th!  Coach Painter has been tied or in second the last few days, so let's push him through to the top spot!

http://www.votemattpainter.com