Happy & Safe Thanksgiving Greetings from the NNPDF!

Dear NNPDF Families and Friends,

The National Niemann-Pick Disease Foundation would like to send everyone wishes for a safe and happy Thanksgiving.

Time and again, our NPD families have shown that, despite the challenges faced, they give thanks for all the opportunities which arise from those struggles through Perseverance, as only NPD families can.

We are very thankful for your continued support and that you allow us into your lives, where we hold you close in our thoughts and our hearts year round.

Best wishes to all for a warm and love-filled Thanksgiving holiday,

~ The Board Members and Staff of the NNPDF

"NNPDF Participates in Giving Tuesday" ~ News Article

Dear NNPDF Families and Friends,

As we continue with our #GivingTuesday campaign, our local newspaper, the Jefferson Daily Union released an article detailing the Foundation's efforts to raise awareness and funds for Niemann-Pick Disease programs on December 2nd, 2014!

The article, written by Pam Wilson, details not only what the intent behind the #GivingTuesday campaign is in general, but why the Giving Tree was the decided theme the NNPDF developed for this year.

Read the article here: http://www.nnpdf.org/documents/GivingTree.pdf

We would like to encourage our friends and families to help raise funds this #GivingTuesday by making their year-end donation online on December 2nd, 2014 to earn matching funds via www.nnpdf.org.

Follow us on Twitter and Facebook!

Dear NNPDF Families and Friends,

Our goal is to open up further avenues of communication between the NNPDF Central Office and all those battling with Niemann-Pick Disease, whether family, friend or patient. With the majority of day to day interactions occurring via smart phones and tablets, it makes the most sense that communities are turning to social media web sites for news and other media outlets due to their popularity and ease of use. 

We would like to encourage our NNPDF community to follow us on Twitter and Like us on Facebook so you are ensured to receive accurate and timely posts with the most recent NPD related news and clinical trial updates. Share our pages with your own followers and help our NPD community and families to reach a larger audience.

It is our hope that as we expand in the social media networks the NNPDF and our family membership will benefit by raising awareness and promoting online giving in support of our programs and research. In addition, it is our goal that families diagnosed in the future, who may not know where to turn, can more readily find their way into our unique and supportive community. 

Join/Like us on Facebook: https://www.facebook.com/groups/nnpdf/

Follow us on Twitter:  https://twitter.com/nnpdf

CNN Article & Video ~ "Could a Form of Sugar Treat Deadly Niemann-Pick Disease?"

Dear NNPDF Families and Friends,

"Hugh & Chris Hempel have two young daughters who suffer from a rare disorder, called Niemann-Pick Type C. Patients struggle with movement, gradually lose the ability to speak and eventually the ability to think. But Hugh and Chris have never given up on looking for a cure." 

Visit the NNPDF Newsline web page for links to the November 22nd, 2014 article and the full report shown in a CNN TV spot on Sanjay Gupta, M.D the same day.

http://www.nnpdf.org/NewsLinePage.html#CNN

Simple Ways To Raise Awareness on #GivingTuesday ~ 2014

Dear NNPDF Families and Friends,

Are you interested in learning simple ways you can support your loved ones this #GivingTuesday?

Visit the NNPDF Newsline: http://www.nnpdf.org/NewsLinePage.html#quote1

NNPDF November 2014 E-Newsletter Now Available

Dear NNPDF Families and Friends, 

The NNPDF November 2014 e-Newsletter is available: http://www.graphicmail.com/new/viewnewsletter2.aspx?SID=0&NewsletterID=1256557&SiteID=4117

Highlights include:

•  NNPDF Giving "Tree" Tuesday
•  Genzyme's "Expression of Hope" Art Contest
•  November 2014 ~ National Family Caregiver's Month
•  NPD Type C in Connection to the Ebola Virus 

ALERT: Let us Help You Raise Awareness into Niemann-Pick Disease with Custom Facebook Graphics created specifically for you and your loved ones!

While GivingTuesday isn't until December 2nd, the NNPDF is working to get an early start on raising awareness across its websites, social media links & within the NPD community.

How can you get involved? It's simple! Request a custom Facebook cover and profile graphics to help raise awareness on your social media pages leading up to GivingTuesday!

For instructions on how to request a custom Facebook cover or profile picture: http://www.nnpdf.org/GivingTuesday2014.html

NNPDF Giving "Tree" Tuesday Custom Facebook Covers and Icons

Dear NNPDF Families and Friends,

With Thanksgiving right around the corner, it also means Black Friday and Cyber Monday are not far behind. Sometimes we can get caught up in the hustle and bustle of these retail days and forget that the holidays are not about the best deals you can get, or even the gifts themselves. It's about giving of our time and our love to those dearest to us. For this, there is GivingTuesday on December 2nd, 2014. 

GivingTuesday was created by the United Nations and 92Y in 2012 and is a national day of giving to kick off the holiday giving season, which takes place on the first Tuesday following the Thanksgiving, Black Friday and Cyber Monday shopping madness. Volunteering, making donations, or even paying forward a kindness you were shown are only a few of many ways you can participate.

The NNPDF, wanting to raise awareness, as well as, honor all those with Niemann-Pick Disease and their families, have put together our Giving "Tree" Tuesday campaign. Every Tuesday and Friday leading up to December 2nd, we will highlight ways in which to give back this holiday season.

We've also created custom Facebook covers & icons for both our US and Canadian families to help spread awareness leading up to December 2nd! These graphics were made to the exact Facebook dimensions and specifications to fit your profile cover and icon.

To view the Facebook covers/icons and instructions on how to request them, visit the NNPDF Giving "Tree" Tuesday web page: http://www.nnpdf.org/GivingTuesday2014.html