Showing posts with label niemann-pick type A. Show all posts
Showing posts with label niemann-pick type A. Show all posts

Monday, June 25, 2012

Trek Atlas Ingram




Trek Atlas Ingram (NPA)
4/11/11 - 6/21/12



Very sadly we pass along the news that little Trek Atlas Ingram has passed away due to the effects of Niemann-Pick Disease Type A (NPA). Trek traveled the world in his short life, venturing with his family from his first home in Hawaii to Thailand, Nicaragua, Japan and around the U.S.

Trek is survived by his parents, Jarrett and Chelsea Ingram, and two older brothers, Peyton and Conner, along with many other relatives and friends.

To read about the global adventures that filled Trek's life, visit the family's blog at Our Sonny Life. A celebration of Trek's life will be held on a Maui beach at noon on Saturday, June 30. For more information, visit the blog babytrekatlas.com.

Our heartfelt sympathy goes out to Trek's family and many friends around the globe.

To learn more about Niemann-Pick Disease Type A, visit www.nnpdf.org.

Friday, March 23, 2012

Kaitlyn Kay Bourgeault


Kaitlyn Kay Bourgeault (NPA)
7/1/09 - 3/22/12


With heavy hearts, we share the news that Kaitlyn Kay Bourgeault, the daughter of Deanna and Chip Bourgeault of Indian Trail, North Carolina, passed away due to the effects of Niemann-Pick Disease Type A (Acid Sphingomyelinase Deficiency or ASMD).

Kaitlyn and her family have touched and inspired so many with their strong faith and the support of their loving community, sharing their story and poignant photos through their family's blog, Kaitlyn's Korner.

For service information, visit the NNPDF's NewsLine page.

The family has asked that in lieu of flowers, donations may be made to the NNPDF in Kaitlyn's name.

Our deepest sympathy goes out to Chip and Deanna, and all of Kaitlyn's family and many friends.