Wednesday, August 31, 2011

2011 NNPDF Family Conference Recap

The 2011 National Niemann-Pick Disease Foundation's Family Support and Medical Conference, held recently in Norfolk, Virginia, was a resounding success! NNPDF families from the U.S., Canada, and several other countries came together to learn the latest in research and clinical care, and to share in supporting one another along the difficult journey presented by Niemann-Pick Disease.

Members of the NNPDF board and staff extend their greatest appreciation to the many volunteers, speakers, the staff of the Sheraton Norfolk Waterside Hotel, and others who went above and beyond the call of duty to make the conference such a wonderfully enriching experience.

Photos of the conference are now available on the NNPDF Web site: Fun photos include many taken at the Peninsula Pilots baseball game, the Saturday evening banquet and dance, conference sessions, and informal gatherings of families and friends.

Visit our special conference page for links to the photos/slideshows. Enjoy!

Monday, August 29, 2011

10th Annual Niemann-Pick Disease October Awareness Month

2011 National Niemann-Pick Disease Awareness Month

The families of the NNPDF are gearing up for this year's October Awareness Month! Some have asked their state's governor or their city's mayor to proclaim October as NPD Awareness Month, some are planning elaborate fundraising events, and some are working up simple awareness projects.

Fundraising and awareness can be as easy as setting up a table at the high school football game, handing out brochures and newsletters, or selling PERSEVERE wristbands for $1 each.

Remember -- awareness drives donations, donations drive research, and essential research will find effective treatments and a cure for Niemann-Pick Disease!

Please consider what you, together with the help of your family and friends, can do to help raise awareness and funding during this October Niemann-Pick Disease Awareness Month!

Visit our October Awareness Month page to see what projects our families conducted during last year's Awareness Month -- you may find an idea that works for you. We will begin posting this year's October Awareness projects and events soon, so please be sure to let us know what you're "cooking up."

We are also happy to help you with ideas, press releases, "best practices," and much more. Please contact us and let us know how we can be of assistance!

Thank you for your support!