Monday, June 25, 2012

Trek Atlas Ingram

Trek Atlas Ingram (NPA)
4/11/11 - 6/21/12

Very sadly we pass along the news that little Trek Atlas Ingram has passed away due to the effects of Niemann-Pick Disease Type A (NPA). Trek traveled the world in his short life, venturing with his family from his first home in Hawaii to Thailand, Nicaragua, Japan and around the U.S.

Trek is survived by his parents, Jarrett and Chelsea Ingram, and two older brothers, Peyton and Conner, along with many other relatives and friends.

To read about the global adventures that filled Trek's life, visit the family's blog at Our Sonny Life. A celebration of Trek's life will be held on a Maui beach at noon on Saturday, June 30. For more information, visit the blog

Our heartfelt sympathy goes out to Trek's family and many friends around the globe.

To learn more about Niemann-Pick Disease Type A, visit

Wednesday, June 13, 2012

Notre Dame Dean Riding Across the U.S. Raising Awareness of Niemann-Pick Disease

University of Notre Dame's Greg Crawford is undertaking his third cross-country bicycle ride to raise awareness and funding for Niemann-Pick Disease. Crawford is the Dean of the College of Science at UND.

Crawford began his ride in Boston, Massachusetts, on May 21, and plans to finish the 3,250 mile ride in Pebble Beach, California, later this month.   For updates, visit Crawford's blog at

For more information about Niemann-Pick  Disease, visit