Wednesday, July 23, 2014

Malinda M."Mindy" Fagan 11/06/1998 ~ 07/23/2014


Dear NNPDF Families and Friends,

It is with heartbreak and sadness that we share word from the home of Ronda and Allen Fagan that their sweet and high spirited daughter, Mindy Fagan, lost her battle with Niemann-Pick Disease in the early morning hours of Wednesday, July 23rd, at the tender age of 15 while surrounded by her family. 

Visit the Newsline for the full post as well as service information:

May the family and friends of our sweet Mindy find the strength they need to move on in the days, weeks and months ahead. Please know that all the families and friends of the National Niemann-Pick Disease Foundation are with you all in our hearts and in grief.

Friday, July 18, 2014

Still Time to Register for the NNPDF Family Support & Medical Conference!

Dear NNPDF Friends and Families,

Fourteen days and counting to the kick off of the 22nd Annual Family Support and Medical Conference! So if you haven't booked your hotel room yet we've managed to extend the hotel price for a bit longer, so now would be the time to book!

Haven't found time to register for the Conference?  There is still time to do so! Be certain to register ASAP so we can know who is attending and prep accordingly! Remember that you can register and pay via check by mail, rather than pay online via credit card! (see image below).

Visit the Family Conference Page:

Any questions about either, feel free to contact the NNPDF Central Offices ( ~ 920-563-0930).

See you in San Fran!

Tuesday, July 15, 2014

July 2014 NNPDF e-Newsletter


The July 2014 NNPDF e-Newsletter now available! Highlights include the following Family Conference topics:

 - Things to Do in Burlingame & San Francisco!
 - Getting Around Burlingame & San Francisco! 
 - Alcatraz Island + San Francisco City Tour! 

Thursday, July 3, 2014

ALERT! 2014 NNPDF Family Conference Hotel Block Bookings Deadline: July 9th, 2014!


Dear NNPDF Families and Friends,

The Embassy Suites Waterfront block of rooms reserved for the 22nd Annual NNPDF Family Support and Medical Conference at the Foundation's special contracted room rate will no longer be available after Wednesday, July 9th, 2014! 

Make sure that you don't miss out on your chance to book your room at our NNPDF special rate!
Visit the Newsline for the full post:

Feel free to contact the Central Office ( if you have any questions or any issues registering or booking your hotel room.

PLEASE NOTE: Registration for the Family Conference itself has been extended, so don't wait to do so if you're looking to book a room as well!