Thursday, February 28, 2013
Dear NPD Community,
In recognition of 2013 World Rare Disease Day, February 28th, the NNPDF would like to provide you with the latest updates to share with friends and family to help raise awareness into Niemann-Pick Diease. We will PERSEVERE in our Quest for a Cure!
To view: Click Here
Wednesday, February 20, 2013
"Harbor of Hope ~ Believing in Tomorrow!”
Join the family members of the National Niemann-Pick Disease Foundation (NNPDF) for the 21st Annual Family Support and Medical Conference to be held in ~ Baltimore, MD ~ Thursday, August 1st thru Sunday, August 4th, 2013! The family conference offers all in attendance an unmatched opportunity to learn about the latest scientific & research news and information directly from the TOP experts in the field of NPD research, medical care and clinical trials. In addition, our attendees have an opportunity to network with other families who share similar challenges as they journey on with loved ones diagnosed with Niemann-Pick Disease.
This year the NNPDF is pleased to also be hosting the third meeting of the International Niemann-Pick Disease Alliance (INPDA)! The foundation will welcome INPDA attendees from 16 countries around the WORLD who all have the same focus ~ that we WILL Persevere in our Quest for a CURE for Niemann-Pick Disease!
The conference will be held at the Sheraton “Inner Harbor” Hotel in Baltimore, Maryland, USA. You may find more information about the conference on our foundation web site at: http://www.nnpdf.org/familyservices_03.html.
We will be updating the web pages with more information as it becomes available. We hope to see many of you at the “Harbor of Hope” in Baltimore, MD this summer.