Thursday, February 28, 2013
2013 World Rare Disease Day Updates
Dear NPD Community,
In recognition of 2013 World Rare Disease Day, February 28th, the NNPDF would like to provide you with the latest updates to share with friends and family to help raise awareness into Niemann-Pick Diease. We will PERSEVERE in our Quest for a Cure!
To view: Click Here
Wednesday, February 20, 2013
NNPDF 21st Annual NNPDF Family Support an Medical Conference!
"Harbor of Hope ~ Believing in Tomorrow!”
Join the family members of the National Niemann-Pick Disease
Foundation (NNPDF) for the 21st Annual Family Support
and Medical Conference to be held in ~ Baltimore, MD ~ Thursday, August
1st thru Sunday, August 4th, 2013! The family conference offers all in attendance an unmatched
opportunity to learn about the latest scientific & research news and information directly from the TOP experts in
the field of NPD research, medical care and clinical trials. In addition, our attendees have an opportunity
to network with other families who share similar challenges as they journey on with loved ones diagnosed with
Niemann-Pick Disease.
This year the NNPDF is pleased
to also be hosting the third meeting of the International Niemann-Pick
Disease Alliance (INPDA)! The foundation will
welcome INPDA attendees from 16 countries around the WORLD who all have the
same focus ~ that we WILL Persevere in our Quest for a CURE for Niemann-Pick
Disease!
The conference will be held at
the Sheraton “Inner Harbor” Hotel in Baltimore, Maryland, USA. You may
find more information about the conference on our foundation web site
at: http://www.nnpdf.org/familyservices_03.html.
We will be updating the web pages with more
information as it becomes available. We hope to see many of you at
the “Harbor of Hope”
in Baltimore, MD this summer.
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