Wednesday, January 5, 2011
"Here for You Always" Special Music Video Project
Singer-songwriter Rachel Taylor, cousin of NNPDF member Lorna Tyrrell (mom of Naomi, NPC), has a song on her new CD titled, "Here for You Always."
The song's message is so appropriate for our loved ones with Niemann-Pick Disease that we decided to create a video/slideshow montage of the song set to photos of our NNPDF members, and we are asking for your help!
For this project, we are gathering a few choice photos of children and adults with Niemann-Pick Disease together with their parents, grandparents, siblings, friends, classmates, pets, etc., to illustrate the song's lyrics of love, support, and nurturing relationships.
For all the details including links to the song, the lyrics, and a photo release form, please visit our special "Here for You Always" Web page at the NNPDF's Web site.
We are eager to get this project underway, so please respond by Valentine's Day, Monday, February 14. Thank you!