Dear Families and Friends,
We received an update from Cindy Parseghian, President of the Ara Parseghian Medical Research Foundation, in regards to a clinical trial planned in 2014 for Histone Deacetlase Inhibitor (HDACi).
"We are pleased to announce a clinical trial in a Histone Deacetylase Inhibitor (HDACi) for the treatment of NP-C disease in the summer of 2014. A group of dedicated researchers are collaborating closely to move a HDACi to trials. To read more about the trial please visit the Ara Parseghian Medical Research Foundation web page at www.parseghian.org or the Foundation Facebook page. More information will be forthcoming as the details of the trial are determined. Patient enrollment will be announced after the trial is approved by the FDA.
~ Cindy Parseghian"
For more information, visit the new HDACi Clinical Trial Page.