Wednesday, January 15, 2014

Ruthven Rockstars Participate in Clinical Trial!

RuthvenDear Families and Friends,

Cody & Kayla Ruthven are making their journey to Maryland for a two week stay to participate in the current drug trial for Cyclodextrin.  They are two of 9 children participating in the trial. After the first two weeks, they will return to the Institute once per month to receive the drug in hopes that it will save their lives.

The family has a blog specifically for their experiences while in the trial that can be found here:

We wish Cody and Kayla the best of luck and look forward to sharing in this journey through their blog!

1 comment:

  1. This is great! Not only could this benefit them, but this should raise general awareness on the disorder and help people deal with patients suffering from this potentially fatal disease. I'm sending my thoughts with them.

    Samuel Lederman @