Hello Dearest NNPDF Families and Friends,
This Sunday, our NNPDF families will gather together with their loved ones to celebrate their “Mom’s” and to honor them for the enduring love and spirited care which they provide for cherished children.
For the families of the NNPDF, Mother’s Day can be a roller coaster of emotions and soul-crushing heartache.
“Mom’s” who have lost their precious child(ren) physically ache to hold their baby one more time and struggle with their identity as a mother and parent.
“Mom’s” caring for their medically fragile child(ren) push themselves to live in the moment and recall every precious smile, giggle and detail, never knowing if this will be the last Mother's Day with their affected child. All while dealing with the heartbreaking grief for all that was lost on that dreaded day the diagnosis was given.
“Mom’s” of adult child(ren) living with Late Onset NPD agonize about their future and struggle with the thoughts of what will happen when mom and dad are no longer able to provide the same loving care and support.
For all of our special super “Mom’s” in the NNPDF community, we wish you a day filled with the delightful memories and unending joys of your children and loved ones. For all you do and continue to do, you are truly unsung heroes today and all year long.
Happiest of Mother’s Day Greetings to you All!
Please follow the link below for a letter to a Special Needs Mom, whose child is unable to write or say the words that any Mom longs to hear……
~ The National Niemann-Pick Disease Foundation