Dear NNPDF Families and Friends,
The NNPDF Central Office was recently notified of three articles "In the News", which address ongoing therapies and family efforts to care for their children for Niemann-Pick Disease type C. The first two articles are highlighted in the Wall Street Journal, the third in the United Kingdom via the BBC.
- "Deaf or Death? In Drug Trial, Parents Weigh Life vs. Hearing Loss"
- "Others Hit Unexpected Obstacles in NPC Survival Fight"
- "Our Bid to Raise Awareness of Our Son's Disease"
Visit the NNPDF Newsline to view the articles: http://www.nnpdf.org/Newsline2015.html#WSJBBC