Dear NPB Families,
At the 23rd Annual NNPDF Family Support and Medical Conference held in Chicago, Illinois, some individuals of the NPB community were able to take part in the Patient Reported Outcome. Please follow the link below to read what participants in this Patient Reported Outcome had to say. They are currently looking for caregivers of our pediatric NPB community to take part in this interview.
Click here to view the full post: http://www.nnpdf.org/npresearch_11.html#Genzyme10222015
Thank you for your help!