~October 16th, 2013~
Genzyme Activities for NPD Awareness & NORD's Letter to Congress
Dear Families and Friends,
On the 16th day of our October NPD Awareness month event, we are spotlighting two NPD Awareness presentations being held today at Genzyme, a Sanofi Company, as well as a letter the National Organization of Rare Diseases (NORD) sent to Congress with reference to the United States Government shut down.
Visit the Newsline to read the full post!
Every day in the month of October we will be sharing fundraising ideas and highlight special events to keep the momentum going. The NNPDF is here to help and support you in these events ~ see all that the NNPDF has availabile to assist you here. So keep an eye on this web site and the Facebook Awareness Event page for the latest updates.
Remember that any events you are hosting for October can be sent to the NNPDF Central Office to be shared with the NPD Community. Contact: firstname.lastname@example.org .
Check back again tomorrow for more updates and new ideas on how you can continue to be involved in raising Awareness this October for Niemann-Pick Disease!