~October 30th, 2013~
NPD Clinical Trials ~ Recent Updates
Dear Families and Friends,
On the 30th day of our October NPD Awareness month event highlights, we are turning the spotlight to the recent updates which the NNPDF has received pertaining to the status of the two ongoing clinical trials into treatment options for both NPD Type C and NPD Type B (ASMD).
A clinical trial study for NPD Type C patients in the use of Cyclodextrin (2-hydroxypropyl-β-cyclodextrin) is being conducted at the National Institutes of Health (NIH) and Genzyme, (a Sanofi Company), is sponsoring a clinicla trail at Mount Sinai School of Medicine for NPB (ASMD).
Visit the Newsline for the full post!
Every day in the month of October we will be sharing fundraising ideas and highlight special events to help families keep the momentum going. The NNPDF is here to help and support you with these events. So keep an eye on the web site and the Facebook Awareness Event page for the latest updates.
Remember that any events you are hosting for October can be sent to the NNPDF Central Office to be shared with the entire NPD Community. Contact: bgreen@nnpdf.org .
The countdown is almost OVER ~ ONE day to go!
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