Dear NNPDF Families and Friends,
To usher in Day 4 of October 2014 as GLOBAL Niemann-Pick Disease Awareness Month, we are asking that our entire Niemann-Pick community reach out to your State Governor’s offices early in October and request that the month of October 2014 be declared as Niemann-Pick Disease Awareness month in your state on behalf of your loved one with NPD.
It’s easy! To find out how to request a proclamation in your state ~ first, try a simple Google Search indicating your state of residence and the words: Governor’s Proclamation (ie: State of Wisconsin Governor’s Proclamation). This search should give you a direct link to the guidelines and necessary contacts associated with your state to request a proclamation on-line. If you have trouble finding the on-line form then call the Governor’s Office or Mayor’s Office and ask who handles requests for proclamations and what information they need.
Visit the Newsline web page for a quick link to where you can write proclamations online as well as more tools and tips: http://www.nnpdf.org/NewsLinePage.html#Oct4