Dear NPD Families and Friends,
The National Niemann-Pick Disease Foundation is pleased to share with the NPD community the October 2014 issue of the Lysosomal Disease Network (LDN) monthly online newsletter, “INDICATIONS”. The NNPDF is highlighted in the "Meet Our Patient Advocacy Groups" section, which covers the work of the foundation as a it relates to who we are, what we do and just how far we have come since the foundation was established in 1992!
The article was written by Evelyn Redtree, writer & editor of the LDN 'Indications' newsletter. Evelyn nterviewed key NNPDF staff, Board of Director's, researchers and scientists to create a complete history behind the foundation, the research goals you, our community, have helped us reach. Other topics discussed in the article are related to:
- Patient Advocacy Support
- Research and the SAB
- Current Clinical Trials
- Meeting the Experts
- Checking your knowledge on Niemann-Pick Disease
Visit the newsline for the article as well as the Day 2 post for October Niemann-Pick Disease Awareness month: http://www.nnpdf.org/NewsLinePage.html#Oct2
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