Dear Families and Friends,
Today, there are thousands of people worldwide that are recognizing and raising awareness about rare diseases. From the United States, South America, and the UK to Turkey, Finland, and Russia - rare disease groups are letting their voices be heard.
Our Niemann-Pick Families are taking action on behalf of their loved ones and Worldwide they are showing that together we are not RARE!
Visit the link below to view our latest e-Newsletter that highlights Rare Disease Day in addition to other foundation updates!