Attention: NNPDF
Families and Friends,
UPDATE: NIH/TRND NPC
Cyclodextrin Clinical Trial Announcement
The National Niemann-Pick
Disease Foundation (NNPDF) Central Offices received an update from
Dr. Denny Porter at the National Institutes of Health (NIH) with reference
to the current status of the NIH/TRND Cyclodextrin Clinical Trial.
Please visit the NNPDF Web
page devoted to the NIH/TRND NPC Cyclodextrin Clinical
Trial for the full update.
The NNPDF will continue to
keep our NPD patient community and their families updated as to the status and
activities taking place throughout this trial.
Thank you to all for their
continued courage, involvement, expertise and support of all involved.
We WILL Persevere in our
Quest for a Cure!
Kind regards,
Nadine
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